Saturday, January 7, 2012

A Quiet Acceptance

The sadness doesn't feel the same way that it used to feel. 


In the beginning it was so overwhelming and so painful that the thought of things not being the way they used to be or the way they were supposed to be was unbearable. It was like losing something or someone and not being able to stand what the future looked like. Crying those big, ugly sobs, unable to catch your breath, falling into an exhaustion and finding a determined strength to somehow un-do what was done. It was like my mind was breaking over my inability to see and know what this new reality would be.


Like drowning. At least how I imagine drowning to be.


Liam is 8 and a half months old today (Jan. 7). I think it is fair to say that it took about 6 months for me to embrace this new reality and come into this quiet acceptance.


The sadness doesn't hurt anymore. It is more like a quiet friend, or maybe companion, who I know is always there, but I can endure its presence. I can calmly accept these circumstances and not let them steal my joy or tear down my strength. 


I feel like I've emerged from an overshadowing fog that veiled the first 6 months of Liam's life. I do not know what happened or how it happened but somehow I have survived (I am sure Jesus carried me). Barely survived. Only survived by Him. 


I have stood at the edge and been tempted to fall into a darkness that would allow me to become lost in my grief and tortured by the mournful pain and shut out from the outside. I have wanted to tell the world to just leave me alone.


But I was not made for that. 


The Creator formed this baby boy. He has huge blue eyes - the same color as his daddy's, and they have long feathery lashes. He has plump, but droopy cheeks and they lift up when he smiles and his sweet little nose gets flat. When I walk in his room in the mornings and he hears me say his name he gets excited and coos a sweet baby "good morning" and smiles and lifts his little arms up towards me. He lights up when he sees his big sister and she greets him with a not so gentle kiss and perhaps a hug that could be called crushing =) He has fun playing with his daddy and sometimes gets a little sad when he leaves to go to work.


I want you to know him. I think you'd think he was a sweet, good, happy baby. He spends his days in the shadow of an amazing little girl who radiates life, joy, energy, and even a little sass. He adores her but she annoys him sometimes too. She just loves life and enters each new day bouncing and bubbling and ends it the same.


They are just perfect. Just what I need. They are a reminder of faith, hope, love, joy, blessing, provision, life, and the One who is the author of all those things. I was made for this.


So I bask in the delight of my children and quietly accept the sadness that comes, free of charge, with those extra chromosomes we did not order.


Once that fog started to lift, the sadness changed. At first I wanted so badly to pray for a miracle to change him. But now, if Liam being a "normal" boy meant he would be anything other than the baby I have today, I wouldn't want it. I want him just the way he is today. Just the way he was in the beginning. Just the way he's meant to be in the future. My son is not "disabled" or "different," he is Liam and he just so happens to have a few extra chromosomes, they were free =) He will not be defined by 49XXXXY, he will help define it. So whatever that means, whether he completely breaks the mold or falls right in the middle of it, we will push him to be all he can, encourage him to be himself, and deep in the heart of this momma, a quiet acceptance of the sadness will rest underneath the love and pride.


Whatever my lot, You have taught me to say,
It is well, it is well, with my soul.

1 comment:

  1. "I have stood at the edge and been tempted to fall into a darkness that would allow me to become lost in my grief and tortured by the mournful pain and shut out from the outside. I have wanted to tell the world to just leave me alone."

    Oh, I am so glad you did not give way to that temptation, Megan! Because you have so much to say now that He has taught you to say "It is well with my soul!"

    I hope you keep writing about your fight for joy. I plan to keep reading, and am so glad I found this link on Facebook.

    Karen Butler

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